A video presentation by Monica Coenraads

On September 9, 2009 the Rett Syndrome Center at The Children’s Hospital at Montefiore in the Bronx hosted its second Parent Gathering. The Director of the Center, Dr. Aleksandra Djukic, gave a presentation entitled Rett Syndrome: What Went Right in the Brain?   Dr. Chhavi Agarwal, the pediatric endocrinologist of the Rett Center, gave a talk entitled Osteopenia in Rett Syndrome.

In this presentation, I address some basic questions regarding Rett research. The focus of the presentation is not the actual scientific data but rather the logistics.  What are the fields of expertise who are involved in the current research?  How does the data get communicated? Where do scientists find funding? How do NIH, pharma and biotech fit into the picture?

As always, I welcome your questions and comments. My email is

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